pgEd’s fourth Congressional briefing, held on Nov. 17 with panelists Diana Bianchi, Jennifer Doudna and George Church, was a great success. With a standing-room only crowd of over 150 in the audience, there were lively discussions about both the science and the social and policy implications of emerging genetic technologies such as non-invasive prenatal testing, CRISPR, and gene drives. The briefing was followed by a visit to the White House Office of Science and Technology Policy. Check out our summary of the day’s events, which has been cross-posted to “Genes to Genomes,” the blog of the Genetic Society of America. Also check out the news coverage of the briefing by Elizabeth Cooney at the Harvard Medical School Office of Communications and External Relations.
Thanks again to our speakers and everyone who attended the briefing!
(Credit for photos 1-3: John Boal, photo 4 courtesy of Diana Bianchi)
Thank you so very much to our colleagues at the National Human Genome Research Institute (NHGRI/NIH) and Unlocking Life’s Code! We are delighted to have our online quiz platform, Map-Ed: Genetics is Getting Personal, selected as their third-ever Resource of the Month. Each Map-Ed quiz is 5 questions, and tackles scientific and ethical questions in genetics. We’re also happy to debut a new look to the quizzes – thanks to the generous on-going grant from Sigma-Aldrich.
Choose one – or have a try with all six – and work your way through the questions. Once you complete a quiz, you can pin yourself on a world map, and watch as knowledge spreads across the globe. Enjoy the interactive features of the map – always a crowd-pleaser – developed with generous support from Autodesk.
We are in wonderful company as we join the ranks of the first two awardees, HudsonAlpha’s iCell and Cell Size and Scale from the University of Utah’s Genetic Science Learning Center.
If you have the chance, we highly recommend seeing Unlocking Life’s Code as it travels around North America in the coming months. Whether you have seen it in person or not – do not miss their website. It is full of excellent resources for teachers, students, and anyone interested in engaging and accessible information about genetics.
Thank you to Harvard Medicine and reporter Elizabeth Cooney for an excellent summary of the discussion about the intersection of law, genetics and public policy during pgEd’s Congressional briefing on March 19th. Check out “Personal Genetics and the Law” in the latest edition of HMS News. We are especially grateful to our panel of experts, all the people who attended and asked excellent questions, and for the support of the offices of Senator Elizabeth Warren and Congresswoman Louise Slaughter. Please read and share!
pgEd presented a workshop for high school students at the American Society of Human Genetics, as well as have our poster accepted at the meeting. We attended many intriguing talks (some of which we will revisit in this space in the weeks to come) and got to catch up with old and new friends, many of whom as just as passionate about public engagement and education as we are!
We were especially excited to get to see “On Beauty“, a film by Joanne Rudnick (of “In the Family” fame) from Kartemquin Films, which follows photographer and activist Rick Guidotti’s efforts to showcase all the beauty and difference in the world around us. From the Positive Exposure site, “The photos give people the permission to see beauty and interpret beauty in their own right. Not to see beauty that is dictated by industry’s ideas of what is acceptable. What started with photographs, has grown into a wide variety of programs created to empower people living with difference – and to educate the world around them.” We have included a link to the trailer – which features one snippet of language that might not be appropriate for all audiences – to which if you are lucky enough to ever see Rick speak in person, will warn you about!
At ASHG, Rick introduced the film, took questions, received a standing ovation, and very kindly dove into an hour-long (at least!) meet and greet line with the high school students (and ahem, a few other, slightly-older-than-high-school age fans as well, see above). There are many other projects aside from the film within Positive Exposures, such as physician education efforts and the Pearls Project – but see the film if you can! It has been widely acclaimed, and rightly so.
pgEd’s Director of Education Dana Waring is honored to be the recipient of the 2014 Phillip Marcoux award for her successes in informal science education in the state of Maine. Dana has visited hundreds of students, often at the invitation of Maine Science Teacher Association members, talking about ethical, social and personal issues in genetics. pgEd is thrilled to have our work recognized by such a wonderful organization, and is grateful for the warm welcome Dana and pgEd’s materials have received over the years. Dana was especially thrilled to receive the award from Maria Palopoli, a 2009 Presidential Award winner for Excellence in Teaching for Math and Science, and currently a 5th grade teacher at Harriet Beecher Stowe School in Brunswick, Maine. Maria Palopoli is also a Board member of the Maine Science Teacher Association. At this year’s conference, in addition to receiving this award, Dana and Maria co-presented materials that updated teachers on advances in genetic engineering and used a mock court case developed by Maria to explore ethical and scientific issues.
pgEd is thrilled to be holding its second Congressional briefing, as part of a series on advances in personal genetics and raising public awareness. This briefing, taking place in Washington, DC on Friday, October 3rd, will focus on emerging genetic technologies, genetic discrimination, and the Genetic Information Nondiscrimination Act (GINA), alongside a research update on the Ebola outbreak and how genome sequencing of the Ebola virus is aiding in the fight to understand and contain the outbreak.
We are delighted to be holding this briefing in cooperation with the offices of Congresswoman Louise Slaughter and Senator Elizabeth Warren. Our panel features a range of experts across several fields: Mildred Cho, PhD, James Evans, MD, PhD, Nita Farahany, JD, PhD, Jessica Roberts, JD, Pardis Sabeti, MD, PhD, and Ting Wu, PhD. We’re looking forward to launching a new Map-Ed quiz on GINA at the briefing!
Details on the program are here.
pgEd is so excited to be part of the Genome: Unlocking Life’s Code exhibit at the Smithsonian National Museum of Natural History. We will be taking questions, doing interactive quizzes, and talking about genomes, ethics, society, and what it all means for you on Thursday August 21st, from 10am to 3pm at the Museum, located on the Mall in Washington, DC.
This week, Marnie was thrilled to attend the Boston screening of Twitch, a poignant documentary by a courageous young woman named Kristen Powers, chronicling her mother’s diagnosis with Huntington’s Disease (HD) and her family’s story leading up to her decision to undergo genetic testing at the age of 18. Through interviews, the film shares the stories of other families affected by HD and explores some of the personal, familial, and social considerations in deciding if and when to get tested, including Kristen’s brother’s uncertainty. Ultimately, Kristen says, this is a very personal decision.
In the Q&A that followed, Kristen spoke passionately about her decision to make the film and her mission to raise awareness. Kristen hopes to release this film on-line as a resource for teachers to use in their classrooms. pgEd shares Kristen’s goal to start the conversation. For teachers interested in lessons exploring some of these issues, check out pgEd’s “Introduction to Personal Genetics.”
The Boston screening kicked off a national tour with upcoming dates in Delaware, Washington, D.C., Texas, Alabama, Spain, Iowa, South Carolina, and North Carolina. Click here to find out more. Can’t wait to see the movie? Learn more about Kristen’s decision to get tested and her results in this 2-part series in USA Today.)
pgEd’s Director, Ting Wu, recently participated in an event that connects Hollywood writers and scientists in an effort to bring exciting and accurate scientific storylines to screens big and small. Organized by the Science and Entertainment Exchange at the National Academy of Sciences and Creative Artists Agency, this work is another way pgEd is striving to engage the public on what is new and exciting in the field of genetics.