Personal Genetics Education Project

Thanks to an energetic session at GETed 2013, pgEd has compiled a list of resources, websites and projects contributed by a number of the participants. We are using this page to share these resources and create a living, breathing document to which we invite you to contribute. These include educational tools for teachers, games and apps, museum exhibitions, culturally-relevant resources for communities, popular websites for increasing dissemination, as well as resources related to health, policy, and entertainment.

American Society of Human Genetics (via Mike Dougherty, ASHG):
–        Science careers mapped out in an interactive flowchart
–        Lesson plans from the Geneticist-Educator Network of Alliances
–        Darwin Day and educational materials on evolution

BioMod (via Carlos Olguin, Autodesk)
–        Nanoscale design competition for engineering biomolecules

BioQUEST Curriculum Consortium (via Linda Grisham, MassBay Community College)
–        Calendar of workshops, including June, 2013 workshop on using data in the classroom
–        Archives of prior projects, including cases related to genomics

Center for BioMolecular Modeling (via Shannon Colton, CBM)
–        Using physical modeling to make the molecular world tangible to students
–        Collection of resources on Nic Volker’s story and XIAP mutation

Ciencia Puerto Rico (via Mónica Feliú-Mójer, Ciencia PR)
–        Bilingual resource of experts, science outreach and engagement
–        Click here to find content on genetics

Coalition for the Life Sciences (via Ed Ramos, Center for Research on Genomics and Global Health, NIH)
–        Resource for political advocacy related to biological and biomedical research

DNA Learning Center (via Dave Micklos, DNA Learning Center, Cold Spring Harbor Laboratory)
–        Educational, lab, and bioinformatics websites
–        History of eugenics, including the Image Archive on the American Eugenics Movement, the DNA Interactive Chronicle, and an article that Dave co-authored entitled “Engineering American society: the lesson of eugenics.”

Genentech’s “Ralph’s Killer Muenster” (via Dana Waring, pgEd)
–        Free iPad app to engage and inspire a broader audience through genetics-based puzzles

Genetic Counseling Cultural Competence Toolkit (via Samantha Baxter, National Society of Genetic Counselors)

Genetic Science Learning Center, Learn.Genetics™ (via Shannon Colton, Center for BioMolecular Modeling)
–        Favorites include Mouse Party (science of addiction), pharmacogenomics, and many others

Genetics and Literature, an interdisciplinary course (via Jay Clayton, Vanderbilt University)

Hollywood, Health & Society (via Sandra de Castro Buffington, HHS)

HudsonAlpha’s digital education resources (via Chris Gunter, Girlscientist Consulting)
–        The Progress of Science timeline
–        Genome Cache, free iPad app and interactive learning module
–        iCell, free iPad app that invites users to explore the inside of a cell

Literature, Film, and Genetics (via Jay Clayton, Vanderbilt University)

MacArthur Foundation Research Network on Law and Neuroscience blog (via Tracy Gunter, Indiana University School of Medicine)

MadSci Network (via Paul Szauter, University of New Mexico)
–        Interactive question & answer website featuring an “Ask-An-Expert” service

National Conference of State Legislatures (via Laura Hercher, Sarah Lawrence College Human Genetics Program)
–        State-by-state analysis of laws broken down by topic; search by “genetics”

National Society of Genetic Counselors (via Samantha Baxter, NSGC)
–        What is genetic counseling?
–        Find a genetic counselor tool
–        Information for healthcare providers

NIH Office of Science Education (going away in September; via Jeanne Chowning, Northwest Association for Biomedical Research)
–        Exploring Bioethics modules (one related to genetics)

Northwest Association for Biomedical Research (via Jeanne Chowning, NWABR)
–        Lesson plans to promote understanding of biomedical research and ethics through dialog, ranging from Bioethics 101 to Advanced Bioinformatics
–        Bio Expo students have produced videos about Crohn’s DiseaseGene Therapy and a Transgenic Salmon Shop

NOVA’s “Cracking Your Genetic Code” video (via Dana Waring, pgEd)

Paul Szauter’s Movie Project, in development (via Paul Szauter, University of New Mexico)
–        Reviews based on scientific and ELSI content

Personal Genetics Education Project (via Dana Waring and Marnie Gelbart, pgEd)
–        Current Genetics Update, new weekly blog feature
–        Map-Ed, pin yourself on a global map after answering 5 questions on core concepts in genetics

Pinterest as a site for dissemination (via Belen Hurle, NHGRI)
–        Boards with lesson plans for high school students
–        Curating searchable collections on internet

Primer on Genetics and the Brain at The Dana Foundation (via Tracy Gunter, Indiana University School of Medicine)

Protein Data Bank (via Shannon Colton from the Center for BioMolecular Modeling)
–        Educational resources for exploring structural biology at PDB-101

Proteopedia (via Shannon Colton from the Center for BioMolecular Modeling)
–        3D encyclopedia for all entries in the Protein Data Bank

ReGenesis (via Tom Chehak, executive producer)
–        Canadian television series (2004-2008) with gaming-themed companion website and website that reviews the real science behind each episode

The Science and Entertainment Exchange (via Ann Merchant, The National Academies)

Science in the News (via Marnie Gelbart, pgEd)
–        Harvard graduate student organization that features an on-line news resource and videotaped presentations

Scitable by Nature Education (via Tracy Gunter, Indiana University School of Medicine)
–        Article on epigenetics and disease

Sense About Science (via Marnie Gelbart, pgEd)
–        Ask for Evidence USA campaign

Smithsonian’s new exhibit “Genome: Unlocking Life’s Code” created in partnership with the National Human Genome Research Institute (via Belen Hurle, NHGRI)
–        At Smithsonian until Sept, 2014 and then it will travel for four years
–        Educational resources on companion website

Thomas.gov (via Ed Ramos, NIH)
–        Search engine for federal legislation

Useful Genetics (via Rosie Redfield, University of British Columbia)  **added August, 2013**
–        A free online college-level genetics course offered on the Coursera platform and open to anyone; it puts more emphasis on relevance than on classical genetic analysis.

Visual Literacy and the Periodic Table (via Linda Grisham, Mass Bay Community College)

Wikipedia needs editing! (via Madeleine Price Ball, Personal Genome Project)
–        With an enormous daily audience (the Genetics page gets approximately 2,200 views a day), the MAOA page might be a good starting point!

Youreka Science (via Marnie Gelbart, pgEd)
–        Collection of short videos explaining recent biomedical findings

23andMe’s message boards (via Paul Szauter, University of New Mexico)
–        A useful resource (accessible only by 23andMe subscribers under “Research & Community/Community”) to get a sense of where people are at with respect to personal genetics

Want to add to the list?

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